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Joy for Salford teen heart campaigner as fundraise tops £1,000


13-year-old Robyn Newell, who lives in Clifton, is celebrating this week after a Bounceathon to raise funds for children with life-threatening heart conditions brought in a staggering £1,000.

The Ellesmere Park High School pupil, who lives with Marfan syndrome, set out to raise around £300 from a project to give young children with terminal and lifelong illnesses the chance to go out on playdates.

She joined around 20 children at Jump Nation in Trafford Park to take part in the sponsored bounce.

Those with heart conditions are severely restricted from playing out with friends or attending after school clubs for fear of medical episodes rearing their ugly head.

But the Children’s Heart Association offers the security of having a specialist cardiac team on hand at all times to make sure the excitement of a rare day out doesn’t get out of hand

Robyn bravely came on camera for SalfordOnline.com to tell us why she wanted to raise money for young children with life-threatening heart conditions.

In an emotional appeal she spoke out about living with the rare genetic illness Marfan syndrome, which affects her heart, eyes, lungs and blood vessels, and means she has to undergo regular operations.

She said: “I want the three or four year olds who have the same problems as me to experience that trust, that hope, to see that glimmer of light at the end of the tunnel.”

You can still donate online here.

All the money will go towards sustaining the Children’s Heart Association to provide many more opportunities for young children in Salford who spend their entire lives in and out of hospital.

Robyn’s mum, Sarah Newell, told SalfordOnline.com: “I thought the day went really well, we raised £1000 on the day which is a fantastic amount.”

“I’m astonished with the work that Robyn has put in. She has turned her anger from having her condition into something very positive.

“She was bouncing for 30 minutes and was shattered when she came off. There was also a cardiac nurse there which meant Robyn and the other children were able to really let themselves go.”

Ann Flear, Chair and volunteer at the Children’s Heart Association, also told us: “The money will go to taking the children on days out that they wouldn’t normally have.

“They want to have normal experiences and not to be defined by their condition.”

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Tom is SalfordOnline.com's News Editor and community co-ordinator.